The Politics of Intensified Data Sourcing in Contemporary Healthcare
328 pp., 6 x 9 in, 8 b&w illus.
- Published: April 18, 2023
- Publisher: The MIT Press
Why healthcare cannot—and should not—become data-driven, despite the many promises of intensified data sourcing.
In contemporary healthcare, everybody seems to want more data, of higher quality, on more people, and to use this data for a wider range of purposes. In theory, such pervasive data collection should lead to a healthcare system in which data can quickly, efficiently, and unambiguously be interpreted and provide better care for patients, more efficient administration, enhanced options for research, and accelerated economic growth. In practice, however, data are difficult to interpret and the many purposes often undermine one another. In this book, anthropologist and STS scholar Klaus Hoeyer offers an in-depth look at the paradoxes surrounding healthcare data.
Focusing on Denmark, a world leader in healthcare data infrastructures, Hoeyer shares the perspectives of different stakeholders, from epidemiologists to hospital managers, from patients to physicians, analyzing the social dynamics set in motion by data intensification and calling special attention to that which cannot be easily coded in a database. He illustrates how data can be at once helpful, overwhelming, and sometimes disastrous through concrete examples. The COVID-19 pandemic serves as a special closing case study that shows how these data paradoxes carry weighty political implications. By revealing the diverse and sometimes contradictory practices spawned by intensified data sourcing, Data Paradoxes raises vital questions about how we might better use healthcare data.
“Urgent and timely in an era of institutional uncertainty on a global scale, Data Paradoxes informs data scientists, clinicians, and policymakers about actual practices around data infrastructures while making an important contribution to scholarly discourse.”
Linda F. Hogle, Professor of Medical Social Science, University of Wisconsin-Madison
“Data Paradoxes reveals the hidden costs of datafication while also showing us the good that data can do when it prompts discussions on how things ought to be.”
Barbara Prainsack, Professor of Comparative Policy Analysis, University of Vienna; author of Personalized Medicine: Empowered Patients in the 21st Century?
“Amidst the many promises of the data deluge, Klaus Hoeyer's engaging book offers a timely reminder that data are produced by humans and assume meaning within social relations.”
Alan Petersen, Professor of Sociology, Monash University, Australia; author of Emotions Online: Feelings and Affordances of Digital Media